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ECIR – European Cancer Inequalities Registry
The European Cancer Inequalities Registry is a flagship initiative of Europe's Beating Cancer Plan. It provides sound and reliable data on cancer prevention and care to identify trends, disparities and inequalities between Member States and regions

Framework

Overview

The European Cancer Inequalities Registry puts forward an EU-wide framework to monitor disparities and report on trends in key cancer prevention and care at regional, national and EU level. Since the aim of the Registry is to monitor the whole continuum of the cancer pathway, the four pillars of Europe’s Beating Cancer Plan – prevention; early detection; diagnosis and treatment; quality of life – are at the core of the assessment framework. Additionally, epidemiological measures of cancer burden are included.

framework

These thematic dimensions are assessed from the perspective of different inequalities, ranging from disparities between countries and regions, to inequalities due to age, sex, income, education or even the level of urbanization.

 

Thematic dimensions

Prevention
Between 30% and 50% of cancer cases in the EU are preventable, according to the World Health Organisation. The risk of cancer can be reduced by following healthy lifestyles, maintaining a healthy diet, being physically active and refraining from alcohol and tobacco consumption. Environmental factors like exposure to air pollution, various carcinogenic chemicals and radiation, as well as some infections, also play an important role in cancer development.
Early detection
Early detection through screening offers the best chance of beating cancer and saving lives. However, progress in implementing population-based screening programmes and participation in those programmes differ across Europe and population groups.
Diagnosis and treatment
Disparities in the access to high-quality cancer care, particularly for timely diagnosis and treatment, persist across the EU. Various factors impact the quality of cancer care a patient receives, as well as their chances of survival, including their age, sex, stage at which the cancer was diagnosed, place of residence and level of education and income.
Quality of life
Thanks to early detection and new technologies for cancer treatment, survival rates have greatly increased in the EU. However, people from lower socio-economic backgrounds are still more likely to die from cancer or less likely to enjoy a good quality of life as cancer survivors.
Mortality
In 2020, 1.3 million people are estimated to have lost their lives to cancer. There are important disparities in mortality rates across Europe and across different population groups. It is one of the main aims of all policy interventions to reduce these inequalities and to lower the overall mortality rates.
 

Inequality dimensions

Inequalities by country
Geographical inequalities persist between European countries and regions, in regard to cancer burden, prevention, screening and care.
Inequalities by sex
Cancer affects men and women in different ways. While some cancers develop only or more often in one sex, there are also inequalities in terms of cancer prevention, screening and diagnosis between sexes.
Inequalities by education
People with low levels of education tend to have lower health literacy skills and may be less aware of the risk factors for cancer, available screening programmes and treatment options. Subsequently, educational inequalities can affect cancer patients' access to cancer care and ultimately also their chances of survival.
Inequalities by income
Cancer treatment and survival also depend on the patient’s economic situation. Low-income patients are less likely to survive cancer and less often benefit from novel cancer treatments. Low-income patients also tend to experience a lower quality of life as survivors.
Inequalities by urbanisation
Differences between rural and urban areas can also generate inequalities in cancer prevention and care.
Inequalities by age
Advancing age is the most important risk factor for cancer overall and for many individual cancer types. However, there are important differences between European countries in cancer prevention, diagnosis, care and survival, even within the same age group, indicating, in some cases, an uneven performance across the age continuum.